KEM’s last week of camp, but his first week with his new “lucky tube” (as he now calls it) has started off really well.  I sat down the Head of the camp to find out how hewas adjusting to life at camp with his NG tube.  Come to find out things are going really well!

Not only has the Head Counselor noticed an increased level of participation but also a new new of energy with all the different rotations.  KEM won 2 games of Gaga Ball (don’t ask me to explain it because after two years I still don’t understand the game) but he also hit 2 targets yesterday during archery.

He still hasn’t yet ventured into the pool because according to KEM “what is the point of swimming if I can’t put my head under water.”  While I understand what he means he also needs to learn that life isn’t always about what we want to do.  KEM also doesn’t realize that TONIGHT he is going to be blackmailed into going into the pool!  Don’t mess with a mom on a mission.  Stay tuned to find out how that goes.. (for both of us!)

While camp adjustment has been great, the 300 calories a day has not been an easy adjustment.   We are all trying to find the best way to get him some good calories with protein during the day but also max out the protein and calories at night as well.  Last night’s dinner was brown rice, carrot sticks and cod fish.  That was a STRUGGLE!   It took KEM an hour to eat the cod (by the way did I mention that he selected cod over turkey burger?).  I keep trying to explain to him his choices have changed and he needs to stop saying he doesn’t want them and instead try them and then eventually adjust to them.  And everyone thought I was a picky eater.  You have never met KEM then…

And while KEM’s adjustments to all of this are at the forefront we can’t ignore KMM’s adjustments either.. More to come on how the baby sister that is also the fierce protector is handling this major upheaval to the household..