we see a light..

So much has happenened since my last post… sorry to have been MIA… we went to the GI dr at the half way mark of KEM’s induction phase (late July) and got GREAT news… not only did he gain 6 lbs. but all of his bloodwork came back better too.  The GI staff and nurses the Day Medicine area were very impressed with his progress and his handling of the NG tube insertion.

About 2 weeks ago K2 and I were having a dance party in KMM’s room and somehow KEM tripped, fell on the tube, and yanked it off his face… for some reason it freaked KEM out so bad that his reaction was to pull the tube right out of his nose.  When he realized what he had done he had a complete meltdown – (HORRIBLE anxiety attack).  He flipped out so bad that KMM ran to her bed and laid in the fetal position crying hysterically.  To say this was a nightmare is putting it mildly.  Thankfully I got them both calm and was able to put the tube back in KEM’s nose.  This better not be the end of our dance parties… I look forward to them!

 

The weekend after the dance party disaster I went to a bachelorette party in OCMD (GOOD TIMES!).  KEM was not at all happy I was leaving and was determined to come with me.. for the whole weekend.  I was quick to tell him “NO WAY DUDE”.  He was worried about the tube coming out… “who is going to put the tube back in if it comes out”.  My response was “your father will”.  KEM’s response to that was “no, you will have to come back home.”  I agreed to do that even though I knew that it would be fine.  Thankfully, everyone and everything stayed where it needed to be.  And Mommy had a great time at OCMD!

This past week has been really interesting for me because K2 have been in NY with their grandparents since Tuesday (8/2).  There was a little NG tube mishap but word on the street is that KEM was able to calm down enough to let his Aunt help out.  K2 have had so much fun with their cousins, Nana & Papa, and their aunt and uncle.  Although I do miss them it is so important to me that they create these memories with their family.  Meanwhile, I have gotten up every morning for the last two weeks and made it to the Y to get a workout in.  Tuesday I saw the movie “Bad Moms” with two of my girlfriends and Wednesday I got to run 10 miles (even though it was on the treadmill!)  And Thursday I experienced my first Blue Apron meal with my coworkers!

On Monday, 8/22 KAM and I start back to school with our students.  KEM has his GI appt. where were are, hopefully, going to move to the remission stage of Crohn’s.

But before that we venture back up to AI DuPont, I get to celebrate my baby brother’s wedding and welcome a new sister to my family…

 

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